tag:blogger.com,1999:blog-8116690042850060767.post7087485027392135478..comments2023-08-10T12:55:23.427+01:00Comments on SUBROSA: Pseudonymisationsubrosahttp://www.blogger.com/profile/00151702590329788260noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-8116690042850060767.post-10331814422519744892014-01-29T23:46:07.655+00:002014-01-29T23:46:07.655+00:00Re collection of info for the government Stewart, ...Re collection of info for the government Stewart, I asked a few years ago for medics to stop requesting unnecessary information from me. If they do ask irrelevant questions then I ask why. Usually get a ‘doesn’t matter’ and I suspect the box is marked ‘refused to answer’.subrosahttps://www.blogger.com/profile/00151702590329788260noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-16161212578388483992014-01-29T23:44:11.473+00:002014-01-29T23:44:11.473+00:00A pleasure Elby.A pleasure Elby.subrosahttps://www.blogger.com/profile/00151702590329788260noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-11468818734261888562014-01-29T23:43:49.666+00:002014-01-29T23:43:49.666+00:00Thank goodness I won’t be here to see democracy co...Thank goodness I won’t be here to see democracy completely die in Britain Crinkly.subrosahttps://www.blogger.com/profile/00151702590329788260noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-86536280492622416192014-01-29T23:42:53.918+00:002014-01-29T23:42:53.918+00:00Well said Alice and as the English NHS is being so...Well said Alice and as the English NHS is being sold off into foreign hands, it makes me wonder where the data will be distributed.subrosahttps://www.blogger.com/profile/00151702590329788260noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-13159422197711176262014-01-29T23:41:58.604+00:002014-01-29T23:41:58.604+00:00JRB, I didn’t know about SHARE. Would you like me...JRB, I didn’t know about SHARE. Would you like me to do a post about it using your comment?subrosahttps://www.blogger.com/profile/00151702590329788260noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-7163413881455785992014-01-29T23:40:25.721+00:002014-01-29T23:40:25.721+00:00My point is that the data will not be anonymous Ji...My point is that the data will not be anonymous Jim. How could it be if one of the intentions is that the latest big pharma ‘miracle cures’ are directed to those in need of them.<br /><br />If it’s anonymous how can they do that?subrosahttps://www.blogger.com/profile/00151702590329788260noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-74382626204313186202014-01-22T06:42:54.833+00:002014-01-22T06:42:54.833+00:00From The Telegraph:
"With the right safeguar...From The Telegraph:<br /><br />"With the right safeguards in place to protect patient confidentiality this new system will be of enormous benefit to patients and help reduce the burden of heart disease in the future."<br /><br />The NHS doesn't seem to have the right safeguards in anything it does and my recent experiences with the NHS and those of several other people I know, prove beyond doubt that the Department of Health just does not care about patients.<br /><br />As I have been saying for some time now, the NHS now exists to:<br /><br />*Control<br />*Subvert<br />*Collect information for the Government<br />*Kill Stewart Cowanhttps://www.blogger.com/profile/14438121139084279087noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-54618079904392088742014-01-21T19:41:31.026+00:002014-01-21T19:41:31.026+00:00Subrosa,
Thank you for the head's up. I'v...Subrosa,<br /><br />Thank you for the head's up. I've already opted out of the now defunct "Spine" project, and also one more local. And now I have to do it again. What is it about "No", I wonder, that they do not understand. Elby the Beserkhttps://www.blogger.com/profile/15060519682739666145noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-52921366185404271672014-01-21T11:05:13.084+00:002014-01-21T11:05:13.084+00:00I breath therefore I am a dot in somebody or other...I breath therefore I am a dot in somebody or others data base.<br /><br />Not a dot of any significance, just one in a matrix of nonentity all jelled in mediocrity.<br /><br />So the FT advises the Transatlantic Trade and Investment Partnership deal has been ratified? <br /><br />Yet another nail driven by the hammer of global oligarchs into the coffin of democracy.Crinkly & Ragged Arsed Philosophershttps://www.blogger.com/profile/08902364411241935656noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-58748844090620661322014-01-20T23:44:31.629+00:002014-01-20T23:44:31.629+00:00Information is power - the power to control. As on...Information is power - the power to control. As one wise person said> Power corrupts.<br /><br />That is the danger.<br /><br />You must never assume that the State is going to collect this data and be bengn.Alice Moorehttps://www.blogger.com/profile/05381422778632377553noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-62869713902553916672014-01-20T18:08:07.502+00:002014-01-20T18:08:07.502+00:00Today, I, like millions of others did some on-line...Today, I, like millions of others did some on-line banking; ordered a repeat prescription; a grocery delivery: renewed my annual insurance; posted on several other sites including facebook and twitter; and sent off several e-mails.<br /><br />No doubt the potential is there for my ‘data’ to have been compromised, but I take that risk daily. Probably as I type, some spotty youth at the NSA or GCHQ is pouring over my on-line activity, trying to make sense of it.<br /><br />What NHS England is proposing is no worse than any other activity we participate in, and besides the evidence gleaned just might save someone’s life.<br />So I would caution against the unconditional acceptance of the hyperbole of the press and other media.<br /><br />And here I must put in a word of praise for NHS Scotland …<br />We, in Scotland, already have a similar scheme, its called - <b>SHARE</b><br /><br />http://www.registerforshare.org/<br /><br />In its wisdom, NHS Scotland have made…<br /> - this an ‘Opt-In’ scheme<br /> - more rigorous controls as to who can access the data<br /> - can only be used when it can be proven is for betterment of health/medical treatment<br /><br /><b>SHARE</b> is just what such a scheme should be – for the benefit of science, understanding and the improvement in the health of ones fellows.<br /><br />I urge ALL in Scotland to sign up for <b>SHARE</b><br /><br />http://www.registerforshare.org/JRBhttps://www.blogger.com/profile/01864418763227369458noreply@blogger.comtag:blogger.com,1999:blog-8116690042850060767.post-68371495997669690692014-01-20T13:54:00.014+00:002014-01-20T13:54:00.014+00:00I'm sorry but I don't follow your logic.
D...I'm sorry but I don't follow your logic.<br />Doctors are coming to realise that the effectiveness of drugs depends on age, sex and even, horror of horrors, ethnicity. As long as personal data is anonymous it can only be to the public good that it can analysed as part of a large data set, so-called 'big data'.<br />Does it matter if this data is sold? Not really but maybe it should be freely given away?<br />As for pay day loans, the solution is in everyone's hands - don't spend what you haven't got! That is a message best learnt in childhood I think.<br />Many years ago a lad in digs with us was in a panic because a well-known retailer was sending him threatening letters as he had not made payments on his store card. For him the first call on his money was getting drunk on a Friday night. If he missed last bus he took a taxi. His rent payments were pretty low down on his priorities. We got his finances in order and even got him saving towards a cassette recorder! Then out of the blue he bought a new pair of trousers. That was because the retailer had now written to him to tell him that he 'had' £10 'credit' (plus his debts!).<br />Don't blame foreign financiers for the stupidity/ignorance of their customers. JimShttps://www.blogger.com/profile/09295953179246578687noreply@blogger.com